Dose any 1 own idiopathic osteoporosis?

i want to speake to any 1 who has this or have been treated for it my 7 year hoary daughter has it and it the individual child at prinsess margaret hospital been see for it there are no suport groups and the osteoprsis foundation cant aid there are single 150 case of this condition reported within medical journal. can any 1 support please?

Answer:
I have not have any personal experience with this disease, but from the documentation that I've read, most children get better most of their bone tissue and although they will have to "play capture up", they will eventally resume normal growth. Its too fruitless you have no support groups, which is a problem surrounded by rare disorders approaching this. But you can join a group that is to say for parents of disabled children. These groups are for parents of kids with adjectives types of disorders. It may not give you alot of information on your daughters condition, but at lowest possible you'll have the support of other family.

Also, have you discussed Osteogenesis Imperfecta next to your specialist? From what I've read, they are testing for this along beside your daughters condition.
Best of luck to you and your little one, and God Bless.
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